Driving Miz Cynthia, Part Two

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Eric the Wheelchair Guy wears a permanent grin and stands tall.

The standing tall part is important, because his clients mostly don’t stand at all.

Eric is helping me solve my wheelchair problem. Last Thursday morning, Mom and I went to his place to check out new wheelchairs.

WARNING: What follows is a fairly intricate discussion of wheelchair selection. For me, it’s simply part of the Saving Elmo journey, but I suspect it’ll be pretty boring for anyone who doesn’t need a wheelchair. Apologies.

Britta, my current ride, is a Sunrise Medical Breezy Ultra 4, AKA “hospital wheelchair.” It’s a nice, stable ride for someone who can propel themselves through the house but rarely gets outside unless someone else is pushing.

Britta was fine for my short-term busted leg that will be mere memory in three or four months, and I’d gotten her at the terrific used price of $350 (she retails for $1,800 or so new). But now, eight months later, I’ve learned enough about mobility to understand that cheap isn’t always the best idea. Britta has some issues:

  • She’s too wide to get through many doorways; to enter the bathroom I had to transfer to a smaller “transport chair.” Transfers are the most dangerous routine act you perform in wheelchairs, and they eat minutes.
  • Britta’s heavy–about 45 pounds–so going up an incline means I’m pushing my not-inconsiderable self PLUS Britta.
  • Her main axle is back behind me by about 8 inches, which puts her wheels* too far back for efficient self-propulsion. It takes a fair amount of strength to get her moving, her momentum runs out pretty quickly, and she’s especially tiring to maneuver on carpet or rough terrain.
  • Her far-back axle means it’s nearly impossible to tip her if I’m being pushed. Unfortunately, it’s also nearly impossible to pop wheelies, i.e., raise her front casters from the ground to get over thresholds and low stairs, when I’m sitting in her.
  • Her wheels are solid, treadless rubber, quiet and easy-moving on hard indoor surfaces like wood and tile but dangerously slippery on wet surfaces, which is outdoor Portland much of the time. She’s got a tendency to slide on wet inclines, which is a bit scary, and the solid wheel lets me find every single bump in my path.
  • Britta folds inward, like an accordion, reducing her width from about 32 inches to maybe 16. But she keeps the same awkward profile, tough even for able-bodieds to handle, and her wheels need wrestling to remove. I cannot, by myself, heft her over the bumper and into my car trunk.

My new “normal” means routinely driving, going up and down inclines, slipping in and out of store aisles and bathroom stalls, sitting close to doors and counters. I can do all those things in Britta but it takes a lot of focus, effort, and forward-planning (not to mention a small army of helpers sometimes).

Besides, the sight of me toiling laboriously up a hill at about a quarter-mile an hour provokes…responses. Some people simply grab the push handles of the chair and zoom me up a hill without permission. Some ask first, and look appalled (or argue) when I say no. (So sometimes I just shut up, smile, and let them push.)

Others slow (way) down and pace me, i.e., they come to a complete stop, patiently wait for me to advance a foot or two, take the next step, and stop…etc. Even in the rain, bless their wet hearts. Or they avert their eyes and hurry past, saying nothing.

I understand and am not offended by any of those reactions–I’ve had them myself when the situation was reversed–but I do become embarrassed. I’d much rather get up the damn hill without becoming a sideshow.

As a result, there’s a lot of stuff I probably could do that I don’t…too much trouble and embarrassment. That’s why I called Eric.

Eric’s part of American Seating and Mobility, and I’m an unusual client for him. “We don’t get a lot of broken legs** in here,” he said, “So…what is it you’re looking for, exactly?”

“Well,” I started, “I need three things from my new wheelchair:”

  1. Easy to self-propel outside, up hills, on wet surfaces, and into/out of tight spaces
  2. Easily load/unload it into the Camry, by myself, in ten minutes or less
  3. It’s at least as (hopefully more) comfortable as my current chair

“Anything else I don’t need. So whaddaya got?”

…and the wheelchair fashion show began. He brought out a modest model, kinda glitzy and 10 pounds lighter than mine but still accordion-folded and too heavy to manage. Nope.

The next had much better wheels that helped you up grades, but didn’t come apart for loading into a car. Nope.

Then wheels and came apart easily, but the heavy frame needed three hands to manage and it was hard to push.

Nope. Nope. Nope.

Finally, Eric gave me a long look. “Wanna see,” he began, slowly, “The lightest high performance wheelchair on the market? We just got one in for another client, a quadriplegic who races wheelchairs. We usually only fit these to people with permanent mobility issues, but your requirements…”

(Cue Also Sprach Zarathustra) He wheeled out…The Ride.

Somber grey, spare, spartan, by a company called TiLite, the ZRA in titanium. Rigid frame; you could fold down the back or take it off, reducing it to a fancy, 15-inch high wheeled cube.

“Sit in it,” he invited. I locked wheels, stood, pivoted, sat. The Ride was about two inches too small for my womanly curves–its wheels brushed my hips–but…wow.

Wow. Just wow.

More comfortable than my office Aeron chair, it snuggled up and caressed my back. I felt enveloped, protected. I gave one wheel a light push with two fingertips, and it shot forward…on CARPET. The brakes were discreetly under the chair, no more running into them when I transferred. Smartphone pocket on the underside, right where I could reach.

Yeah, but could I get it in the car? “No problem,” said Eric, “Pop off the wheels, fold down the backrest, like so. See if you can lift it with one hand.”

Yep. “THIS one.” I said, “How much?”

He told me.

Gulp. “Let’s do it.”

I swear, you could build a house with fewer choices than it took to order that ride. “Let’s start with the easy stuff,” Eric proposed, “Camber.”

Cam-who?

Turns out that’s the angle of the wheel to the ground. Straight-up-and-down (0 degrees) is narrowest but least stable. Basketball players push the bottom of the wheels to a 9-degree slant–or more–which means they can turn on a dime without tipping…but width increases dramatically.

“2 degrees,” he decided, “It’s adjustable if you need more. What about your front forks?”

My what?

Two hours and something like ten single-spaced pages of options. With each, Eric patiently retrieved samples, explained advantages. Would it add weight or decrease it? Extend maneuverability and speed? He measured odd distances and bodyparts.

You can get these in just about any color of paint you want, with all sorts of decals to match your personality (I decided not to comment on the alarming number of skull designs). In the end, though: Paint gets chipped. Decals wear. And titanium is a very pretty metal.

My new ride will be natural titanium, satin finish, with black or grey trim.

“Cushion. What are you using now?” he asked, and I smugly proffered my primo gel-celled sit-upon.

“I could just keep this one, save some money…”

He eyed it pityingly, “Usually those get a little… hot and uncomfortable after awhile. Try this one,” and he held out a ginormous contoured thing, about a third the weight of mine.

I sat. Wow. OK, new cushion, too. This was getting expensive. “Uhm…what’s the resale value on this chair once I don’t need it anymore?”

“Practically zero,” he said cheerfully, “You’d have to find someone with close to your measurements and your particular issues. It happens, but I wouldn’t count on it. You’re not the typical user.”

Ulp. Costs like a small car, and I guess I’ll be using it when I’m an old lady or something. 

“Look, we can work with your insurance to pay at least part…” he began.

I’d tried that with the last wheelchair. Kaiser required that I schedule an evaluation–next available in two months–and then go through a rehabilitation class, at the end of which they’d decide if the more advanced wheelchair was warranted. It was a three or four month process, with no guarantee of approval.

As his Alzheimer’s progressed, my father required a special tilting wheelchair. The insurance route to get it cost more than nine months of intrusive examinations, lost paperwork, PT evaluations that asked my father to do things he couldn’t understand let alone perform, and lots and lots of arguing and unreturned phone calls.

Dad died two days after the chair arrived. The insurance company had the grace to apologize.

“Nope,” I said firmly, “I have until July 10 to start driving myself. It’s June. Every day that I can’t drive is costing me $125. Let’s do this.”

“You will be,” Eric said solemnly, “The third patient I’ve ever had who paid cash.”

Thank heavens for savings and retirement accounts and financial guys who grimace but get you what you need. Regaining mobility is NOT cheap. Home modifications, wheelchair ramps, hospital beds, reach sticks, clothing modifications (try managing a pair of slacks when your leg brace keeps sliding onto your ankle)… Basically, anything that helps you live with an injury is on your own dime, not covered by insurance.

It does make a heckuva tax deduction, though. 😉

So my new ride arrives in about three weeks, third week in June. I wish it were sooner–I’m moving home today and will be stuck in the house or paying that bloody $125/day until my new TiLite arrives–but soon I’ll greet my new best (titanium) friend.

Was gonna name her Titania, but one of my Facebook buddies pointed out the close resemblance of “Titania” to “Titanic,” and I don’t need any more catastrophic accidents in my life, thank you very much. Naming will wait until she introduces herself.

There is an ulterior motive here (you knew I had to have one, right?): I know how The God of Adventure thinks. He’s been chortling through all my reasonable, economic-minded, patient-compliant behavior for the last eight months, and making sure that bone doesn’t grow.

So I figure it’s time to do something stupid. (Well, not as stupid as falling, but close).

I clean out my bank account to buy this incredibly fancy wheelchair, acknowledge that I’m in this for the long haul, and learn to speak real wheelchair. Then he’ll say, “Really? ‘Zat so?” and push that damned adventure button of his. The one that starts the bone healing.

I start growing legbone like it’s going out of style. All of a sudden I’ll be left with the Ferrari of wheelchairs, which costs like a small car or a good kiln, for no good reason. The God of Adventure will live off that one for weeks.

Why didn’t I think of this sooner?

_______________

*In wheelchair parlance, “wheels” are the big back wheels that do most of the propulsion. The little wheels in front are called “casters.”

** Here’s a thing I’ve noticed about the medical community in general: Patients become their ailments. Until I’ve made a connection with the caregiver, I’m not Cynthia, I’m the “nonunion femoral fracture,” or simply The Femur.

It’s a simple way for medicos to quickly describe the issue, but I do make sure they realize that there are other body parts–including a pretty good brain–attached to The Femur. Once we’ve gotten to know each other I become an entire human again, but I’ve resigned myself to continuing to be The Femur in third-party discussions.


The Saving Elmo series covers my adventures after crashing to the ground on Elmo, my replacement knee, sustaining an “open, comminuted fracture of the left femoral shaft.” It’s a tad more dire than it sounds; if my bone doesn’t grow completely back and return me to normal function with Elmo-the-knee-replacement, there’s a new, more painful, less effective femoral replacement in my future…with eventual amputation.

If you want to follow along on the journey, try these posts:

Happy Crashiversary, Elmo

September 18th, 2017|18 Comments

So how did you break your leg?

August 10th, 2017|2 Comments

View from the mountain

August 4th, 2017|4 Comments

The ravell’d sleeve of care…

July 26th, 2017|6 Comments

Test: Can you spot the cripple?

July 22nd, 2017|14 Comments

Zeroing in and leveling out

July 20th, 2017|34 Comments

Femurs, accessibility, and Utah: Saving Elmo II

July 16th, 2017|14 Comments

Tripping the light surgical: Saving Elmo II

July 14th, 2017|12 Comments

Wheelchair traveler…

July 12th, 2017|7 Comments

Filling up on sweetness, with fragility

July 6th, 2017|8 Comments

Saving Elmo: Sometimes the bear eats you

June 26th, 2017|17 Comments

No place like it…

June 12th, 2017|6 Comments

Driving Miz Cynthia, Part Two

June 5th, 2017|9 Comments

Drivin’ Miz Cynthia

June 1st, 2017|5 Comments

Home-ward bound

May 29th, 2017|10 Comments

Room 15: Paying it forward

April 3rd, 2017|12 Comments

Whippersnapper

April 1st, 2017|5 Comments

The Fortress

March 25th, 2017|9 Comments

On the bone again…

March 10th, 2017|14 Comments

Moonlight at sunrise, with jitters

March 8th, 2017|8 Comments

The wheeled view

March 2nd, 2017|10 Comments

Elmo, Beorn, and the Ferengi’s ears

January 30th, 2017|12 Comments

Cliffhangers, clues, and claying around

November 28th, 2016|7 Comments

8 weeks: Patience for the unvirtuous

November 16th, 2016|12 Comments

Death by chicken

October 20th, 2016|5 Comments

Mr. Desmond

October 13th, 2016|7 Comments

Saving Elmo 4: The Meltdown

October 9th, 2016|13 Comments

Bedpans and reachsticks

October 2nd, 2016|4 Comments

Saving Elmo 2: The Plan

September 29th, 2016|11 Comments

Saving Elmo 1: I fight concrete…and lose

September 27th, 2016|26 Comments

Click edit button to change this text.

2017-07-03T14:23:39+00:00

9 Comments

  1. Stephen Richard June 7, 2017 at 9:51 am - Reply

    The NHS may be slow, but I don’t have to fight insurance companies for the equipment needed. Yes, I do need to persuade the administrators, but most of the expenses are covered. Your story reminds me how lucky we are with the NHS, even though it will not stop me complaining!
    Are you going to be at BeCon? It would be nice to meet.
    Steve

    • cynthia June 7, 2017 at 11:00 am - Reply

      Yep, I will be at BeCON and a couple of the other side workshops. We’re talking about some kind of get-together during the conference, would love to get together.

  2. Gail Northness June 5, 2017 at 9:34 pm - Reply

    You are such an entertaining author, as well as instructional! Good luck when you first take on the wheels!

  3. Barb R June 5, 2017 at 6:18 pm - Reply

    Once you are done with it, that wheelchair is going to make a hell of a great push cart for hauling glass to and from the kiln!

  4. Ted Bach June 5, 2017 at 4:04 pm - Reply

    Welcome to the “sport wheelchair …” world. It’s very similar to what my son finally got after I raised the roof for several weeks … sometime daily calls make it seem that there are some “wheels” that need grease more than some of the others waiting patiently in line. I can hardly wait for her to arrive …

    You go, girl!!

    Ted

  5. kathryncecelia June 5, 2017 at 2:15 pm - Reply

    As you heal, I learn. I’ve learned a lot about determination. I’ve learned a lot about having savings. I learned that you plan things and they may not work out the way you think, but you just keep planning. You are a good mentor. I just wish I lived closer so I learn at the foot of a master glass artist. I know your logic with the cosmic gods that planned your journey and I hope having the best ride available will get them to change their focus from keeping you wheeling to becoming wheelless. Here’s to a healing leg. (wheelchairs kissing, not glasses)

  6. Zoe Topsfield June 5, 2017 at 8:16 am - Reply

    I had no doubt that you could make the ins and outs of wheelchair technology an interesting read so poured myself a second cup of coffee just to settle in to it. Also though: many of us have family and friends with wheelchair problems so right now I feel a whole lot more educated. But! June 27:(. You won’t have it for BeCon.

  7. JoAnn Wellner June 5, 2017 at 8:06 am - Reply

    I admire your strength and determination…..as well as your ability to write and create. Wishing you a smooth and safe transition as you return home…..and new bone growth too!!!

  8. ellen abbott June 5, 2017 at 7:23 am - Reply

    if I learned anything from Greek mythology it’s that the gods like to fuck around with us humans. so if the trick works it will be cheap at twice the price.

Comments welcome! (thanks)

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